Baby Nolan has continued to seize despite medication changes and increases. Our neurologist is concerned that we may not be on the right track in regards to managing his condition. We went back in for another EEG to try to capture an event. Nolan did have a seizure while hooked up, but after reviewing the procedure records Dr. Norman is unsure what to make of them. Jeff and I have decided with the guidance from Dr. Norman that we need to see a epileptologist who specializes in infantile onset seizures. Our referral has been made to Texas Children's Hospital in Houston and we are waiting on an appointment time. Due to the demand at this particular epileptic center and the caliber of physicians it might be several months until we are able to get in. The genetic testing should be back within a couple of weeks as well.
The positive news is that Nolan is achieving all of his milestones! In fact he is already rolling over and laughing!! This is hopeful that we are not dealing with a seizure disorder that is linked to cognitive set-backs. We enjoyed the beautiful weather this weekend and spent a lot of time outside. Nolan and Jeff were my support team for the half marathon on Sunday. After we cleaned up, we were able to catch Melissa finish the full before heading to the Arts Festival! Although the entire seizure ordeal is a roller coaster, we are doing our best to continue life as usual at the Thompson house.
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